Well we went to Sawyer's eye doctor Feb. 1st and were told that Sawyer has not made any improvements and his nystagmus is staying the same. The optic nerves however are still pink meaning they have blood flowing through them, which is great news! Dr. Wilson told us that his optic nerves are still severely underdeveloped and that they don't look as if they've grown any. I am still holding on to the fact that no news=good news, right? His eyes are 20/20, just underdeveloped optic nerves.
Here is how the doctor broke it down for me: It's kind of like a computer who has a very clear picture on it and you're trying to download that picture; the wires of the computer are so small that it's taking forever to process the information and download that picture. It's just getting small pieces at a time. Same with Sawyer's eyes! His eyes are 20/20, but his optic nerve is so small that the picture is taking a long time to be processed to this brain and he's only getting bits and pieces, not the whole picture.
I am just SO beyond blessed that Sawyer is healthy otherwise! Yes, he may not have vision like most of us do but he is still perfect in God's eyes. The Lord allowed Sawyer to be blind for a reason and I have faith in his plan.
We are still trying to come up with ideas to fund raise. We are thinking about doing a "Dinner in the Dark" for Sawyer! I have very minimal help so if anyone wants to help or has any idea please email me. It's sad to say that I feel alone in figuring all of this stuff out!
Anyway, I hope everyone is having a great week and I will be back to update later! :)
We are doing a dinner in the dark and have a good friend who has done a ton. If you have questions, you can email me at jenniferpletcher@gmail.com. Happy to help!
ReplyDeleteMy cousin is pretty good at putting fund raisers together, too. If you want you any advice or help just text me and I'll see if she can help! I'm sure she would love to do it!
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